Lynn's World

DELAWARE SARCOIDOSIS SUPPORT GROUP ANNUAL PICNIC

 

 

 

The next meeting of the Delaware Sarcoidosis Support group will be our annual picnic.  Details are below. 

 

The Annual Sarcoidosis Picnic has been scheduled for:

 Wednesday, August 13^th at Anne Glass’s House

902 N. Broom St

Wilmington, DE  19806

If the weather is nice we will have an outside barbecue with hotdogs/hamburgers, etc. 

If you are able, please bring a dish to pass.

Please feel free to contact me with any questions – I look forward to seeing you there!

Will

Will Braunlein  

Program Specialist

American Lung Association of Delaware

1021 Gilpin Ave

Wilmington, DE  19806

302.655.7258

Help Line 1-800-LUNG-USA

www.lunginfo.org  

Talked to my Rheumatologist yesterday and he confirmed that he wanted me not to continue physical therapy at that facility.  He stated that he gave clear instructions as to what type of physical therapy that I was to receive.  After speaking with the facility, he was very disappointed in the fact that they decided to add to his instructions without consulting him, and also exacerbating the pain without any concern.  He went on to state that he would be increasing the dosage of Neurotin (Gabapentin) soon. 

 

Just thought that I would keep you informed.

 

Take care,

 

Lynn

 

JANINE SARCOIDOSIS OUTREACH FOUNDATION

(A 501 C3 TAX EXEMPT CHARITABLE ORGINIZATION) 

 

PLEASE SAVE THE DATE AND JOIN US!

 

SARCOIDOSIS WALK FOR A CURE

 

OCTOBER 25TH 2008

JEWISH COMMUNITY CENTER

5601 S BRAESWOOD

HOUSTON, TX 77096

REGISTRATION BEGINS AT 7:30 AM

 

IF YOU CANT BE HERE, YOU CAN BE A VIRTUAL WALKER, OR ASK SOMEONE TO WALK FOR YOU.

 

SPECIAL GUEST: DR SALCEDO MD, AND DR RANDLE, MD. BOTH TREAT MANY SARCOID PATIENTS. OTHER GUEST TO BE ANNOUNCED.

 

ENTERTAINMENT, GOODY BAGS, JSOF CHEERLEADERS, VENDORS AND SO MUCH MORE.

 

PELASE JOIN US FOR THIS WORTHWHILE EVENT PROMOTING SARCOIDOSIS AWARENESS, EDUCATION AND RESEARCH INTO A CAUSE AND CURE.

 

FOR PLEDGES, SPONSORSHIP, OR DONATIONS, PLEASE DONATE ONLINE AT WWW.JSOF.ORG, PAYPAL, ANY WACHOVIA BANK, OR MAIL TO JSOF WALK - P.O. BOX 1008, ALIEF, TX 77411.  FOR MORE INFORMATION PLEASE CONTACT US VIA EMAIL OR TELEPHONE 1-800-846-5868.

 

THE FUNDS RAISED WILL AID IN THE DEVELOPEMENT OF EDUCATIONAL MATERIALS, ADMINISTRATIVE SUPPLIES, WEB-SITE DEVELOPMENT AND THE PRODUCTION OF JSOF SARCOIDOSIS PUBLIC SERVICE ANNOUCEMENTS, AS WELL AS OUR WALK FOR A CURE EXPENSES.

 

THANKS FOR YOUR SUPPORT

Well, I tried it and so far my pain has not minimalized.  I admit that I pushed it a little too.  When I am in public I try not to show to much.  Am I wrong for doing that?  It's just me I guess.  I did tell the therapist when it hurt and how much it hurt though, but I finished my exercises.  They have me doing aqua therapy which isn't too bad except for wearing a bathing suit in public.  I am still not comfortable with my skin.  Also I do the stationary bike and arm exercises.  I just want to know when do I receive the massage therapy that was prescribed.  With the fibromyalgia, I thought that  that was supposed to help.  Pain or not, I need a massage.  Anywho, the question my family has for me is will I go as prescribed.  I told them that as long as it doesn't cause us anymore financial hardship than we already have with my many medical bills, than I will.  Will see>....

 

Take care and be blessed...

Hello everyone,

I have started yet another Sarcoidosis Support Forum to help to promote awareness for this dis-ease.  Please check it out and join if possible.

It is within a health site entitled "Revolutionaryhealth.com". 

 

Check it out by clicking on this link http://www.revolutionhealth.com/groups/sarcoidosis-support-group