Lynn's World

Well, I thought that after the eye surgery everything would be alright.  Wrong, I was sent next to the otolaryngologist who informed me that I would be having yet another sinus surgery as soon as possible.  Because of the CAT Scan, it was noticed that my sinus sarcoid had flared up and caused me to, believe it or not, develop a double ear infection which resulted in the loss of hearing on the left side.  Because of this, I will be going back into surgery on May 19th.  Also, I was asked by a member in my sarcbuddies group about the lab finding from my eye surgery.  It was found to be sarcoid granulomas in both eyelids and also below my right eyelid.  The doctor stated that it was a definite possibility that it would return.  Well, my upper eyelids remain fine, but the lower right eyelid is again inflammed and swollen .  It has only been one month.  That just goes to show you how this disease works. 

 

There are new pics of me before and after the surgery in my pics section.  Also, please feel free to comment on these blogs. 

 

For more information about this disease please visit www.sarcinfo.com.  You are also welcome to visit our sarcbuddies group on msn. 

 

Take care and be healthy.

After a week of battling a very bad cold, I was surprised that my PCP cleared me for my upcoming surgery on Tuesday.  My vitals were very good, EKG good, breathing ok, and meds checked and updated.  I love my PCP.  She is very thorough and caring.  I will update you in about two weeks.

 

lI had a doctor's appointment two weeks ago that didn't go well.  My doctor, in the midst of doing an accuppressure treatment, fell asleep.  I knew he was dozing off, but the kicker is that he didn't think I knew it.  I go to him for pain therapy to say the least, I was in more pain after leaving than before I got there.  I was suppose to go to him tomorrow but of course I cancelled.  The thing is, I really like his methologies and he seemed as if he truly took an interest in helping me to beat this dis-ease.  This really pissed me off.  My family couldn't believe that I didn't raise cain right then and there, but I just wanted to get out of there as soon as possible.  One thing that I noticed about most of us who suffer with Sarcoidosis is that we are just trying to find answers and are interested in anyone who lends us that ear.  What I mean is that we always get that "the pain is in our head"; or "there is nothing wrong with us".  This is why I am in this dillema.  I want help, but I don't want to have to deal with someone who can't just honestly say, "I am to tired to give you my best today."

 

Also, I am dealing with the enlarged nodules on both of my eyelids and beneath my right eyelid.  I tried the Tobradex treatment for two weeks but it didn't work.  Now I have to see another Opthomologist to recieve direct steriodal injections in all of the affected areas.  Can you say, OUCH!!!!   Will let you know how that goes..

 

If you haven't by now, please join the Sarcbuddies support group.  It is something that all of us need as well as our families.